I am equally grateful to my family and friends who stood by Debbie for so many years and surrounded us with love and support during her final weeks. It was remarkable to see everyone focus on one thing, making Debbie as comfortable as possible while caring for one another. There were no discouraging words, only compassion, kindness, and love. One of my greatest joys was seeing Debbie meet her two-week-old great-granddaughter, Lucy, made possible by a 600-mile round trip that her parents gladly made so they could share that moment with her.
Tuesday, July 7, 2026
She is at Peace.
I am equally grateful to my family and friends who stood by Debbie for so many years and surrounded us with love and support during her final weeks. It was remarkable to see everyone focus on one thing, making Debbie as comfortable as possible while caring for one another. There were no discouraging words, only compassion, kindness, and love. One of my greatest joys was seeing Debbie meet her two-week-old great-granddaughter, Lucy, made possible by a 600-mile round trip that her parents gladly made so they could share that moment with her.
Wednesday, May 13, 2026
Two Years in Edgewater
It is hard to believe that nearly two years have passed since Debbie moved to Edgewater. I have become very comfortable with the ebb and flow of life there. Edgewater is in my backyard just a block away and I can see a glimpse of it from my back deck. The facility is about 18 years old and some major remodeling is in progress. A water fountain feature and an endless path of overlapping figure eights with nice landscaping was added. It is very nice and it was built with donated funds.
Debbie has been sleeping 12 to 14 hours a day which is not uncommon for a resident in memory care. The problem was Debbie often slept those hours consecutively and that was causing her some issues with incontinence and preventing her from taking her medicines at a regular time. I contracted for additional help for Debbie to come four hours a day from 10 am to 2 pm. This person helps Debbie to get up in the morning, take a shower, get dressed, take her medicines, and eat lunch at an appropriate time. I am certain that we are doing the best we can for Debbie, that she is living her best life, and everything else is up to God.
Sunday, March 22, 2026
Where Have You Been?
Another three months have passed in Debbie’s long goodbye journey. She has declined a little more, each decline a subtle milestone, but still she is able to join me for dinner every day.
Saturday, December 27, 2025
Life Goes On
It has been 575 days since Debbie moved into Beacon Springs, the memory-care community at Edgewater. Beacon Springs is her safe harbor. The caregivers know her well and treat her with such gentleness. Her apartment is filled with little pieces of home that help her stay anchored as her memory slips further away. Even though her world is getting smaller, she has found a way to be content within it.
Monday, September 15, 2025
Move Along
Here is a long overdue update on Debbie’s journey. Time is flying by, and I feel like I am never caught up. There is always too much to do and I have too little energy to do it all.
It has three months of challenges for Debbie as she continues her long goodbye. Since the last post she made two trips to the hospital, one by ambulance the other I drove her. Both were overnight stays, but she was able to return to Edgewater both times.
Debbie continues to lose ground cognitively, but she is unaware of the total extent of her condition, and we are grateful for that. She often does not sleep well so mornings are a difficult time for her. After an hour or two she usually joins in the scheduled activities and is generally calm. I visit at least once every day and always for an hour or two before dinner as this is by far her best time.
We have a daily routine. The first is to help her clean up and change clothes, go for a walk (outside if the weather is good), and then watch a little television. We sit at the same table with another couple where another husband visits his wife everyday too. We have become good friends.
Last month I moved closer to Edgewater, just two blocks south of the campus. I will miss the Bridgewood neighborhood and the many friends that Debbie and I have made over the last 24 years. I went to a different school in 5th, 6th, 7th, 8th, 9th, and 10th grades, all different school districts spread across three states. Being in one place for so long was something I will always cherish. But the Bridgewood house was empty without Debbie and being able to walk or bike to Edgewater seemed like a good option.
The move was more work both physically and mentally than I expected it to be. So many small details and follow-ups to follow-ups. William was a great help moving. Jackson and Cassidy travelled from Kearney and with Mikki and Hunter they organized my great room. They selected new furniture, set everything up, and decorated it in two days. My 98.5-inch television (that's 7 feet by 4 feet) looks good in there!
My new tricycle has worked out great. There is already 55 miles on the odometer from just going a few blocks to Edgewater and back!
Onward and Upward! Bob
Saturday, June 7, 2025
Yesterday was Debbie's 69th birthday.
Debbie has been in Edgewater for one year now. She has adapted well to living there and it continues to be the best life possible that I can provide for her. I still visit every day. Most days I must help her with hygiene issues as she is most comfortable taking help from me. Then before dinner we walk around the building or the campus if the weather is nice. If I have FAIR Plan work that needs to be done, I open my laptop while Debbie is content sitting next to me while I work.
Since Debbie has been there, there have been six deaths in total, with two in the last few weeks. We lost Maggie, the life of the party. Maggie told me she was there because she had dementia and then laughed and laughed. She maintained her sense of humor, making her pleasant company. About a month before her passing her awful disease went into high gear and forced her into skilled care. Debbie and I would visit her there and by this time she seldom opened her eyes. But when I held her hand and talked to her, she would occasionally squeeze my hand to let me know that she was still there. Cindy passed last weekend. She always had a smile for me and occasionally a wink to let me know she was still there. Her courage to participate in activities while her body was frail and failing was inspiring. I miss them both.
I appreciate your continuing thoughts and prayers along with the calls, texts, emails, Facebook posts, and lunch dates that are my life support. Debbie and I are blessed to have such a large group of friends. While Debbie may not know any of this and has lost the ability to know people’s names, she is still there inside and has a degree of awareness. A few days ago, she motioned for me to lean closer as if to whisper a secret and then she kissed my ear and said, “I love you.” She is still there!
Saturday, April 5, 2025
Calm and Happy
Here is an update on where we are on our journey. Debbie is still at Edgewater in the memory care unit called Beacon Springs.
The last few months have been a time of loss. A longtime friend from my Preferred Risk days died, and another is now in memory care. Recently, several of the residents in Beacon Springs have died, two have moved to long-term care, and one is in the hospital. The losses continue with Debbie as she continues to lose more cognitive ability. She is starting to hallucinate. She is hearing voices and then responding to them. Her words make no sense, but then I only hear half of the conversation.
The good news is that Debbie is calm and generally happy because she feels safe. She is always clean, well-fed, and tended to by wonderful people who care about her. To the best of her ability, Debbie participates in group activities. She has many friends and family who visit. So, from that perspective, she's luckier than most people.
As I watched Debbie’s slow decline, I occasionally allowed myself to wonder how long this would go on and what it would be like when we get closer to the end. I quickly stopped that line of thought because it does no good to worry. The best thing is just to deal with it when it comes and live in the present. I have learned to enjoy little things, like a smile, holding hands, or sitting quietly together.
I am finding my life to be quite different as I have never lived alone. I was married to Carol for 28 years before she died, and Debbie and I have been married 24 years. At first, I hated living alone, then for a few months I enjoyed the solitude. But now it's back to where I don't need solitude as much as I need to be around people. I go to the office every day and often have lunch with friends.
I leave the office at about 3:30 to head over to Edgewater. Every day I help Debbie and the other ladies move to the dining room table. I cut Debbie’s food and do the same for several others. A couple of them wait for me to cut their food before they eat. That is when I get some smiles and live in the present.
Onward and Upward!
Thursday, January 9, 2025
Surviving the Holidays
Second, there were many visitors, some travelling from a distance to see their loved ones. A few of the residents were taken out to dinners, family gatherings, and church services. What follows is often confusion and anxiety for the residents. Perhaps it is just the change of routine, a glimpse of their past life, or just getting tired that causes it.
Thursday, October 31, 2024
Debbie's Community
Debbie was sitting with Rebecca, the activities director,
when I came in for a visit yesterday. She told Rebecca, “There’s Bob!” I am
grateful that she still knows my name at times while accepting that it is
becoming less frequent. Debbie continues to be well adjusted to life at Edgewater
and is living her best possible life there. She is calmer. She is less aware of
what she has lost and makes the most of what she has left.
Because of my daily visits I am acutely aware of the daily routines of the residents and the staff. It is a joy being with the other residents in memory care too– each one has story and in a small way I have become a part of their world. I have connected with them, and I know I have made their final journey little bit better. It is sad when they pass, and two have passed in October. No one recovers from dementia.
There is Carol who a few months ago complained loudly about everything but is calmer now. When Debbie has visitors, we are sure to introduce them to Carol, and she lights up like she has been selected to meet the royal family. Judy and Cindy always sit near each other and look out for each other. Judy always has a smile and wants to share a thought or two like it’s a secret. Cindy will always make eye contact and smile while she waves hello. Maggie, a retired teacher, has a great sense of humor. Pat is often in pain when she moves but has a sense of dignity that is evident to all. Sally’s husband comes in every day like me to help get them settled at the table for meals. Jerry does the same for his wife.
There are some that have few visitors but do get a lot of attention from the staff. It’s a community and I am grateful that we found it for Debbie.
Onward and Upward! Bob
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Friday, September 13, 2024
Debbie's “Long Goodbye” Continues
Wednesday, June 26, 2024
Debbie's New Normal
It has been over six weeks since Debbie moved into the memory care section at Wesley’s Edgewater campus in West Des Moines. I am happy to report that the move and transition were better than we hoped for as she was immediately calmer and happier in this more structured environment. She has a nice room; it is quite large, and we call it her apartment. The facilities and the staff at Edgewater are fantastic.
Debbie continues to decline cognitively, a little bit each day. She cannot read, follow conversations, or express more than her basic thoughts and needs. When asked a question she freezes up as she senses that it is a question, perhaps from the rising inflection at the end of the question. We try not to ask her questions, but it is hard not to because it is polite to ask people what they might need and give them choices.
Monday, May 13, 2024
Debbie's Move to Edgewater
I want to let you know that Debbie is entering the later stages of her illness as those around her can notice daily declines. Debbie’s needs have progressed to the point where she was moved into long-term memory at Wesley Life Edgewater in West Des Moines last week.
This has been a tough decision, and I am a mix of sadness because I miss her being at our home but relieved knowing that she’ll be getting the care she needs. Edgewater is well-equipped to manage her symptoms and provide her with the best possible quality of life. She is already responding favorably to her new surroundings.
Soon I will post how to visit or where to send her cards and photos.
Onward and Upward! Bob











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